Sometimes We Just Need Someone To Tell Us We're Not Crazy

Sometimes we just need someone to tell us we're not crazy, that whatever is making us think we might be crazy is extraneous and probably wrong.

This is one of those times for me.

For the past few months, I've been noticing how hard it is for me to catch my breath after walking up even the smallest flight of stairs.  Sometimes, I'll wake up in the middle of the night with my heart beating wildly for no apparent reason.  And just last night, I was trying to talk and walk briskly at the same time but found myself having to stop talking just to breathe. 

I've had some other health issues recently that aren't really resolved, too, including a newly-discovered heart murmer that means I'm getting an electrocardiogram next week.

My SO keeps telling me that we're just out of shape.  Considering we walk more now than we used to, and I feel more out of breath now than I used to, I don't believe it.  But hearing him say that, and having to repeatedly justify my worries in the face of his skepticism makes me second guess myself.  (And I already second guess myself on my health a lot as it is, since I'm constantly worried about whether or not insurance will cover it.)  He seems to think I'm just making things up so that I can go to the doctor (because that's so much fun?), or exaggerating normal things.

The thing is, I've been on the pill for almost 10 years straight.  I was a smoker during some of that time too.  Plus, just being tired and having to fight for breath constantly is bound to make a person paranoid.  Fighting with him over it (because that's what inevitably happens - he tries to brush it off and I get pissed that he doesn't believe me or think that I know my own body well enough to know the difference between when something is just slightly off or way off) is not really helping. 

Has anyone else had heart problems because of their birth control, or even just weird things going on with their body that other people wouldn't believe them about?  I know I can't be alone but I really need to hear from other people that I'm not.

Posted by wax_ghost - February 12, 2009, at 03:43PM | in Health
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23 Comments

I should say that, shortly after I wrote this, my SO and I talked about it again. He tried his best to be supportive and I tried my best to make sure that I acknowledged his own concerns. So things are better here.

But I'd still like to hear other people's experiences. Even the Mr.'s supportiveness is not quite as soothing as hearing about what other women have gone through.

[0+] Author Profile Page MissKittyFantastico said:

Maybe he's trying to keep you from worrying too much since there's nothing you can do until the tests come back?

I went off the pill in October and I've never felt better. I was having anxiety, depression, NO sex drive at all, pains in my legs, I felt tired all the time... bad new bears. I was without insurance for most of the time I was on the pill, or had insurance that did not cover it. I went to Planned Parenthood for cheaper services. Even they, a woman-centered organization, repeatedly told me that it wasn't the pill, it was "in my head." Thanks. They kept offering me other hormonal options, even when I told them the hormones made me uncomfortable. Finally, I just quit taking them and the hubby and I switched to condoms and spermicide film. I feel GREAT. Literally, the first month off of them, I felt like a new human! It actually inspired my thesis project for this semester, and I'm finding a lot of weird anecdotal stuff that matches my experience. There was a link on here a while back about a woman who used the patch and had a bunch of awful side effects. Don't dismiss it. Also, my mom had the shortness of breath you are describing, and kept saying it was allergies. When she finally went to the doctor, she ended up being diagnosed with CHF! I'm not trying to scare you and tell you this is what you have, I'm just saying don't let it go.

Thanks, flamingofeminist. I am definitely NOT letting it go! It was kind of the same with the other medical issues I mentioned, where I kept telling myself that they weren't real or weren't important - until I couldn't deny it anymore. I still don't know what is causing them but talking a doctor confirmed that there was something not right.

I don't think it's anything life-threatening, but I do think it's serious enough that I don't want to have to continue dealing with it any longer than I have to.

(By the way, what is CHF?)

Nevermind, I was just watching Grey's Anatomy and as soon as they said "congestive heart failure", I went "Oh! CHF!"

If it is anything like they showed on t.v. (which I realize it may not be), I doubt I have it.

[0+] Author Profile Page GrowingViolet said:

It really could be anything. If you're having new shortness-of-breath problems that aren't linked to something like a recent major weight gain, you should definitely see a doctor about it. Shortness of breath is not a normal Pill side-effect (unless it's clotting-related, a risk for smokers), but it could relate to the old smoking habit itself coming back to haunt you. But there's no way to make any kind of accurate determination or even reasonable ballpark guess without seeing a health care professional in person.

Thanks, GrowingViolet. You're right; I tried to diagnose myself on the other medical issues and then discovered that I was basically ignoring some symptoms because I thought I already knew what it was! So I definitely learned my lesson on that one. I am hoping I can ask some questions when I go get the electrocardiogram next week, and I needed to get myself a primary care doctor anyway so I made an appointment for that today.

[0+] Author Profile Page GrowingViolet replied to wax_ghost :

Glad to hear that you've got the appointment scheduled! Sometimes that feels like half the battle, really... Best of luck with everything.

[0+] Author Profile Page Risolutezza said:

I was on the pill for 5 days before I started having chest pains and swelling in my left leg., No shortness of breath though. But you are most certainly not crazy, please don't ignore your body!

[0+] Author Profile Page meeneecat said:

I have Endometriosis, and basically it took me ten years to get a diagnosis (as is typical for women with the disease, doctors are notoriously poorly educated about it). In the meantime I was told that I was crazy, malingering, "it's all in my head", or it's really X, Y, or Z (one of a million other diseases/illnesses that I didn't really have but nevertheless was still misdiagnosed with because unfortunately none of the 20+ or so doctors that I saw over this ten year period were educated enough to figure it out)...And all while this was going on I could never be sure of what was causing all the strange problems I was having, from internal bleeding, excruciating pain, and mysterious infections to high-grade fevers and unexplained allergy/asthma symptoms among others. I got treated really badly whenever I had to go to the ER (which was pretty frequent actually)...I was either ignored completely or they rolled their eyes and told me that I was just "whining about my periods" (despite pain from Endo being compared to being "worse than being labor" by those women who have experienced both)

So basically, I just cried a lot a read a lot...the latter would probably be more helpful than the former :)...But it totally sucks when everyone around you either doesn't want to listen or thinks your nuts. One thing that helped me with the whole "feeling so isolated and being laughed at" part was online communities, I think online communities are great...Even though you are not quite sure what you have - there are still communities that talk about both specific symptoms and general health related stuff, and so that might be a good place to find support and maybe meet other people who have had similar experiences/symptoms.

And I know that this piece of advice is rather obvious, but definitely see a doctor! In your particular case, it's going to help a lot if you have a good relationship with them, it's especially important that you can trust them and that you feel they listen and take you seriously. The reason I ended up going through so many doctors is because most of them didn't listen or take me seriously...and so I constantly was switching doctors...I don't know what your insurance situation is, so I also realize that sometimes it's not always possible to "just switch doctors"...actually at many different times I had also applied for state assistance/medicaid (because I needed surgeries and had several other health-care needs as well aka really really high medical bills)...If you are concerned about your current insurance not covering something, or you are under insured or not insured at all, it might be worth checking with your state to see what programs they offer (I actually found my local congressperson's office was really good at getting information on this type of stuff)...Sometimes they have additional assistance available if you have high medical bills or if you need a particular service that you are having trouble accessing (for example your insurance is denying you, or you can't find a doctor)...

Also, one final note about the BC...I was actually on some form or another for about 8 years. In the back of my mind though, I sort of always felt something was wrong. But because none of my doctors really knew what was wrong with me, they all assumed a BC script would solve most of the problems that I was having (i.e. pain, irregularity, cysts, etc.)...Anyways, I actually realized after about a couple years on the pills, that my symptoms were actually getting worse (often the hormones in BC can aggravate more severe forms of Endometriosis despite common belief held by most doctors that BC will help people with Endo). However, because I too was so unsure about what was going on with my body, I felt uncomfortable going off them since every single doctor that I had every been to all said I should take BC. It wasn't until I later received an official diagnosis after an "emergency surgery" and finally went to a specialist that he told me "No, No, No, NO NO! You definitely DO NOT want to be on BC, that will make things worse"...so basically for ten years I was aggravating my condition making it a lot worse than it probably would have been if I hadn't ever taken the BC. So anyway, that's just why I stress finding a good doctor (if possible) that will listen to you and take your concerns seriously.

Best wishes, I hope u feel better soon, and are able to figure out all the stuff with your health.

Ugh, that is my fear, since I haven't had a primary care doctor here.

Glad to hear that you finally got it diagnosed, though. I hope you've been doing better since then?

BC can do any number of things.
I had a small benevolent cyst that went away on its own once i started Depo (I'm off it now for bone density reasons, which I think are really caused by Seattle/low vitamin D but the pill isn't too much trouble).

All BC for me lessens or completely eliminates cramps. The truth is we don't know enough female biology to know why ANY medicine does one thing for me and something else for you. Allegra made my cramps worse, for example, and Allegra is for allergies.

I do suspect that the BC pill I'm on has raised my blood pressure, but it was low-ish before.

Whatever it is, you're likely not imagining it.

[0+] Author Profile Page Sabriel said:

Wax Ghost, you are not crazy.

It's good that you're paying attention to your body and taking your health seriously.

For the record, I was born with a heart murmur and it has never been a problem for me. I had a pediatrician tell me straight up, "the biggest problem with mitral valve prolapse is that people who are diagnosed with it start to think of themselves as fragile and avoid sports and exercise. Being sedentary is a big risk to your health; being active is not. Your condition is not that serious."

So yeah, I've been living with it my whole life and I've barely noticed it. I know it's scary because it's your heart, but hearts are tough.

About a year ago I started having heart palpitations, and I freaked out. I talked to my doctor about it (who is an awesome woman) and she told me that it was probably stress and caffeine. I had my heart checked. My heart was fine. I cut back on coffee (it was tragic. A great loss) and the palpitations quit bugging me.

But you know, I saw a doctor. What if it had been serious? It's better to listen to your body and check with a doctor when things seem wrong, to the extent that you can afford it. I have no health insurance right now, so... yeah... but if I were really scared about my heart again I would have it checked out again in a heartbeat.

[0+] Author Profile Page RevolutionarilySpeaking said:

I've had chronic migraines since before I even knew that word. It took me 7 years (and I'm only 19) to get my doctor to give me something other than extra strength tylenol, when pain-killers aren't even appropriate for treating true migraines. Everyone would tell me, "You're too young to even know what a migraine is!" I pressed for years, saying "I THROW UP when I get headaches" before someone actually believed it was more than spending too many hours on the computer.

In short, it is YOUR body, and you know it better than ANYONE. If you say "I can't breathe" and your doctor says "work out" you say, I have been, can we explore another option? Don't take no for an answer, because THEY provide a service for which YOU PAY!

Track your symptoms, too. Having something on paper that the doctor has to read can help slow the appointment down, as the average doctors spends what? 9 minutes with you? Insufficient.

Good luck!!

Track your symptoms, too. Having something on paper that the doctor has to read can help slow the appointment down, as the average doctors spends what? 9 minutes with you? Insufficient.

That's great advice.

[0+] Author Profile Page Terabithia said:

I've been thinking about going off the pill for awhile to see how it goes. I went on it before I ever started having sex, so I have no way of knowing if it might have affected my libido or anything. If I stopped taking the pill we could use condoms for awhile, but what's really holding me back from stopping it is the horrible unpredictable periods I used to have before I started the pill.

I was also thinking the pill might be causing some pain during sex, but the doctor gave me another explanation for that and some stuff to try so I'm going to stay on the pill for now.

[0+] Author Profile Page RevolutionarilySpeaking replied to Terabithia :

I sympathize with you on that one! I want to give my body a break from the hormones, but I don't want to buy stock in Tampax. Nor do I want to miss work/school like I used to.

Have you considered a hormone free IUD? I have but I don't know how it will affect my periods.

[0+] Author Profile Page MissKittyFantastico replied to RevolutionarilySpeaking :

Does that stop periods like the pill does?

I don't know all that much about IUDs but the idea of sticking a metal thing in my uterus kind of freaks me out. I saw an episode of House (I know its a totally unrealistic show) where that caused a horrible metal allergy in someone, and I already have mild metal allergies to cheap jewelry.

If I can't solve this problem after trying the doctor's suggestions, I will probably go off the pill for awhile and if I end up liking that better I'll have to consider things like an IUD.

I've thought about doing the same thing but I also have the same fear. But (and I'm telling myself this too!) doesn't everyone have an allergic reaction to cheap jewelry? And I'm pretty sure IUDs aren't made out of the same kinds of metals as cheap jewelry; if this article is right, I think you and I should be fine. :)

I have an IUD and it's the best thing I ever did. I was on the Pill for 2 years, and the doctor was concerned about it because I'm overweight (working on fixing that LOL), apparently in some studies they saw an increase in diabetes in overweight women who took the Pill, of course, it's hard to tell what is the cause and the effect in those types of studies. I also hated having to keep up with it and was constantly worried I'd miss it. So the doctor suggested I do something else and an IUD was at the top of her list.

Anyway, I haven't had children and so I've read some doctors (although I don't know what doctors) may be hesitant to suggest an IUD, because your cervix is smaller (and in fact there's a lot of misinformation on the internet about that too, a lot of out right lies about IUDs in general, if you have questions, talk to a doctor). You just need an experienced Ob-gyn who knows what she's doing and you'll have no problems. I had cramps (the worst were immediately after, but subsided gradually) and was sore for about two days after it was inserted but after that, I was fine. My periods are way lighter than before, they last a day or two and are very light, and as time goes on, I have less cramping too. I have one that uses progesterone, the Mirena one. It lasts for five years, and I'll need it replaced in about a year and a half. I will definitely be getting another one.

It's also much cheaper than the Pill. I went through a subsidized clinic because I didn't have health insurance and was a full time college student at the time, so I didn't pay for it, but if memory serves me correctly it cost about $400 then. The Pill can run $20 to $40 a month, so the IUD is much cheaper. If you have decent health insurance they should cover it.

[0+] Author Profile Page SquarnAnne said:

I just wanted to let you know that I went through something VERY similar about a year ago, although it turned out it WAS just in my head. I went through an EKG and a Holter monitor (both normal) before I noticed that I felt great (no racing heartbeat or shortness of breath) every time I was on my placebo pills. I'm very prone to anxiety issues, and I've noticed that certain brands of OC tend to make things WAY worse. I once had myself convinced that I had a UTI for over two weeks (again, normal lab tests)! Thankfully, I have a really understanding and awesome NP who agrees with me that the anxiety is a real side effect and that it's NOT acceptable. I've finally found a pill that doesn't make me feel any worse (and even slightly better) than I was before I got on birth control. My point is, even IF everything's normal, don't feel like an ass-- hormones DO have psychological effects on some people and it's NOT OK!! Don't ever let a doctor talk you into sticking with something if it makes you feel even slightly off!

That's really interesting. I'm prone to anxiety issues too. I'm just about to go on my placebo pills so I'll have to see if I notice anything different. Thank you.

[0+] Author Profile Page SquarnAnne replied to wax_ghost :

Glad to help! I went through ALL kinds of crazy stuff for the last two years trying to find a decent pill. I know there's nothing scarier than the "OMG, I'm MAKING IT ALL UP!" feeling. It's always good to get things cleared up, though, especially when it comes to your heart health!

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